You Don't Look Sick!

You Don't Look Sick! pdf epub mobi txt 电子书 下载 2026

出版者:Haworth Pr Inc
作者:Selak, Joy H./ Overman, Steven S., M.D.
出品人:
页数:144
译者:
出版时间:2005-4
价格:$ 112.94
装帧:HRD
isbn号码:9780789024480
丛书系列:
图书标签:
  • 慢性疾病
  • 隐形疾病
  • 健康挑战
  • 自我倡导
  • 疾病意识
  • 心理健康
  • 生活方式
  • 支持团体
  • 个人故事
  • 健康教育
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具体描述

""Coming to terms with this reality was a lot like accepting the death of a loved one.""You Don't LOOK Sick!: Living Well with Invisible Chronic Illness chronicles a patient's true-life accounts and her physician's compassionate commentary as they take a journey through the three stages of chronic illness--Getting Sick, Being Sick, and Living Well. This resource helps you focus on building a meaningful life that contains illness as opposed to a life of frustration and fear. Designed for patients in at all stages of the chronic illness journey, this book will also be illuminating for caregivers and loved ones.From the book: ""I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones.""You Don't LOOK Sick! addresses practical aspects of chronic illness, such as: hiring a doctor managing chronic pain coping with grief and the loss of function winning battles with health and disability insurers countering the social bias against the chronically ill recognizing the limitations of chronics illness care and charting a path for changeIn You Don't LOOK Sick!: Living Well with Invisible Chronic Illness, you will find stories, dialogue, humor, examples, and analogy of the three stages to illustrate a challenging but navigable journey. You will also find suggested reading materials for learning to live well, medical Internet resources, illness-specific Web sites, names and addresses of national associations, and a bibliography of medical books by topic. The short chapters and straightforward language of the book will be helpful for readers who are weary and dispirited.

From the authors: "I've learned that having a chronic illness is not a prison sentence. It does not mean I must spend the rest of my life feeling depressed and angry, locked away from the world inside my little sick box. It does not mean that I am useless and no longer have any gifts to share, but it may mean that I must develop some new ones."--Joy H. Selak"My goal is to work with patients so that, like world class athletes, they can perform at their peak capacity. My job is more than giving answers; I must educate, counsel and encourage patients to set goals and implement a personal care program as well as take appropriate medications."--Dr. Steven Overman

The authors are experienced public speakers. If you wish to inquire about their availability to speak to patients or health care professionals, please contact Joy Selak by email at JoyWrites@austin.rr.com.

《您看起来不像生病!》 “您看起来不像生病!”——这句话,或许曾被无数次地,带着不解、怀疑,甚至一丝责备,投射在那些饱受隐形疾病折磨的人身上。这本书,正是献给每一位被这句话困扰、被误解、被孤立的灵魂。它不是一本关于具体疾病的医学指南,也不是一个简单地讲述“坚强”的故事集,而是一场深入人心的探索,一次对“看见”与“被看见”之间鸿沟的细腻描绘。 想象一下,你正承受着难以言喻的痛苦,身体里仿佛住着一个叛逆的陌生人,它时不时地给你致命一击,让你精疲力尽,感官失调,思维混乱。你小心翼翼地管理着每一天,计算着体力的消耗,规划着社交的边界,努力在“正常”和“失控”的边缘维持一种微妙的平衡。然而,当你尝试向外界倾诉,寻求理解和支持时,换来的却是那句冰冷而尖锐的“但你看起来不像生病啊!” 这句话,如同一道无形的屏障,将你与周遭的世界隔离开来。它剥夺了你发声的权利,否定了你内在的真实感受。那些没有外在可见伤痕的疾病,如慢性疲劳综合征、纤维肌痛、肠易激综合征、精神健康障碍,以及许多自身免疫性疾病,往往伴随着难以形容的痛苦和功能障碍。患者的症状是真实的,他们的挣扎也是真实的,但因为它们无法被肉眼轻易捕捉,所以很容易被质疑、被忽视,甚至被当成是“矫情”或“心理作用”。 《您看起来不像生病!》正是从这个敏感而普遍的视角切入,它拒绝用病理学的冷峻数据来堆砌,而是选择用文学的温度,用情感的共鸣,来触碰那些隐藏在“正常”面具下的真实。本书的写作,源于对无数个“你看起来不像生病”的瞬间的深刻洞察,以及对那些因此而承受巨大心理压力的个体的敬意。 它深入探讨了“隐形疾病”对患者日常生活、人际关系、职业发展乃至自我认同带来的全方位冲击。读者将跟随作者的笔触,走进那些被误解的内心世界。你会看到,当一个人被诊断出一种无法轻易被理解的疾病时,他们所经历的不仅仅是身体上的不适,更是一场关于信任、关于价值、关于存在意义的艰苦搏斗。 这本书不会提供“快速治愈”的秘方,也不会承诺“只要积极就能好起来”的廉价慰藉。相反,它鼓励我们去倾听,去学习,去理解“看不见”的痛苦。它揭示了社会普遍存在的认知偏差,以及这种偏差如何无意中加剧了患者的痛苦。很多时候,一句不经意的“你看起来不像生病”背后,蕴含着的是缺乏对复杂生命体验的想象力,是对那些与众不同之处的天然戒备。 《您看起来不像生病!》是一面镜子,照出我们集体对于“健康”和“疾病”的狭隘定义。它挑战了那种将疾病等同于外在表征的浅层认知,引导读者去思考,真正的健康,是否不仅仅是表面的无恙?那些在内心深处与病痛搏斗的人们,他们的勇敢和韧性,是否比那些看得见的伤痕更加令人动容? 本书的价值在于,它为那些难以启齿的痛苦提供了一个发声的平台,为那些默默忍受误解的人们带来了一丝温暖和认同。它不仅是写给患者看的,更是写给每一个渴望建立更深层连接、更具同理心的人们。通过这本书,我们可以学会如何更敏锐地观察,更真诚地倾听,更温柔地回应。我们可以学会,当一个人告诉你他们正在经历痛苦时,即使这份痛苦没有外在的痕迹,我们也应该选择相信,选择理解,而不是用一句“你看起来不像生病”来轻易否定。 《您看起来不像生病!》是一次关于看见的重塑,一次关于理解的呼唤。它旨在唤醒我们内在的同理心,让我们能够超越表象,去触碰那些隐藏在“正常”面具下,真实而深刻的生命体验。这是一本关于坚韧,关于共情,关于在看不见的战场上,依然努力生活的普通人的书。它邀请你一起,打破“看起来”的局限,去看见那些生命中最真实、最动人的力量。

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