The Ethics and Governance of Human Genetic Databases 在线电子书 pdf 下载 txt下载 epub 下载 mobi 下载 2024

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Hayry, Matti (EDT)/ Chadwick, Ruth (EDT)/ Arnason, Vilhjalmur (EDT)/ Arnason, Gardar (EDT) 作者

Cambridge Univ Pr

译者

2009-3 出版日期

296 页数

$ 141.25 价格

HRD

丛书系列

9780521856621 图书编码

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The Ethics and Governance of Human Genetic Databases 在线电子书 pdf 下载 txt下载 epub 下载 mobi 在线电子书下载

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The Medical Biobank of Umea in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

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