Moonrise 在線電子書 pdf 下載 txt下載 epub 下載 mobi 下載 2024


Moonrise

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Wolfson, Penny 作者
St. Martin's Press
譯者
出版日期
243 頁數
242.00元 價格
Hardcover
叢書系列
9780312289089 圖書編碼

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發表於2024-11-13

Moonrise 在線電子書 epub 下載 mobi 下載 pdf 下載 txt 下載 2024

Moonrise 在線電子書 epub 下載 pdf 下載 mobi 下載 txt 下載 2024

Moonrise 在線電子書 pdf 下載 txt下載 epub 下載 mobi 下載 2024



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Moonrise 在線電子書 pdf 下載 txt下載 epub 下載 mobi 在線電子書下載

Moonrise 在線電子書 圖書描述

Moonrise is Penny Wolfson’s first-person account of her family, her son Ansel, and his progressive disability, caused by the genetic disease Duchenne muscular dystrophy. The journey begins when he is born and deemed a particularly beautiful and magical baby, continues with the alarming possibility, at the age of two, of “wrongness,” takes us through the diagnosis of disease and prognosis of early death, and brings us to his adolescence, where his parents are never sure if the moon is rising or setting over his life. As she traces her son’s development and the impact of his disability on her worldview, she embarks on a quest to understand scientific advances and their implications. (The gene was isolated at approximately the time Ansel was diagnosed.) She also explores special education, giftedness, prenatal testing, and the genetic links she shares with her mother, sisters, and son. Questions about the disease-causing mutation persist: What does knowledge of the self on a molecular level mean? Is genetic self-knowledge our goal now, much as knowledge of the psyche was in the last century? Moonrise is an essential contribution to the dialogue about genetics, as well as a deeply human story about a remarkable child and his family.

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