Learning to Live with Huntington's Disease 在线电子书 pdf 下载 txt下载 epub 下载 mobi 下载 2024

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Sulaiman, Sandy 作者

Jessica Kingsley Pub

译者

出版日期

176 页数

$ 29.32 价格

Pap

丛书系列

9781843104872 图书编码

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发表于2024-11-29

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Learning to Live with Huntington's Disease 在线电子书 epub 下载 mobi 下载 pdf 下载 txt 下载 2024

Learning to Live with Huntington's Disease 在线电子书 pdf 下载 txt下载 epub 下载 mobi 下载 2024

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Huntington's Disease (HD) is a hereditary illness passed on via a defective gene. There is a fifty per cent chance of inheriting it from a parent and there is yet no cure. Learning to Live with Huntington's Disease is one family's poignant story of coping with the symptoms, the diagnosis and the effects of HD. This book presents the struggles and strengths of the whole family when one member loses their future to a terminal illness. Told by the sufferer and other significant family members, the individuals describe the burden of watching yourself and others for symptoms of HD, including involuntary movements, depression, clumsiness, weight loss, slurred speech and sometimes violent tendencies. The family recounts the challenge to remain united and describes how they approached issues such as whether or not to be tested for HD, how much information to disclose to relatives, whether to have children or not and guilt if one sibling inherits the illness and one does not. Both honest and positive, the author stresses the importance of re-inventing yourself and your present, prioritizing relationships and retaining a sense of humor.

Learning to Live with Huntington's Disease 在线电子书下载 mobi epub pdf txt 在线电子书下载

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